Have any of your patients or their caregivers/family members shared with you their feelings about not being heard?
Has a patient ever shared an idea they felt would be useful for others with ESRD?
If so, we know you’ll understand the value of engaging such individuals in efforts to improve patient care. We need your help!
The Network has convened a group of Patient Subject Matter Experts (SMEs) to provide patient perspective and feedback to the Network on educational materials, quality improvement projects and other issues that relate to our work in improving care to ESRD patients. Please consider nominating patients, transplant recipients, and family members/care partners who are interested in sharing their talents and ideas with other SMEs in the Network.
What do SMEs do? Ultimately, they help Network staff understand what is important to patients, share useful ideas and experiences, and foster Network initiatives at their own dialysis facility and transplant center. Their efforts focus on providing feedback on Network quality improvement activities related to infection prevention, transplant referrals, home dialysis training, vocational rehabilitation, and patient engagement.
For more information, please contact your local Network.